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Press Release by Absolutely Public Relations in Volunteer
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New website focuses on Angelman Syndrome and Tyler Davis, a Colorado toddler diagnosed last year with this rare genetic disorder.
View all releases by Absolutely Public Relations
This press release is about: syndrome, angelman, disorder, website, information, genetic, holben, colorado, absolutely, davis, chromosome
2003-03-28, Absolutely Public Relations - New website focuses on Angelman Syndrome and Tyler Davis, a Colorado toddler diagnosed last year with this rare genetic disorder. The website, http://www.OurAngelTyler.com, has been launched by Maggie Chamberlin Holben, APR, owner of Absolutely Public Relations. Angelman Syndrome is a genetic disorder caused by abnormal function of the gene UBE3A, located within a small region (q11-q13) on chromosome #15. The disorder affects males, females and all racial/ethnic groups equally. There are estimated to be between 1000 and 5000 cases in the U.S. and Canada.(Lakewood, CO) - The website, http://www.OurAngelTyler.com, has been launched by Maggie Chamberlin Holben, APR, owner of Absolutely Public Relations. Holben, who makes the announcement, says the site has been created "pro bono" by her consultancy to provide an easily accessible forum for sharing Tyler`s ongoing story with family, friends and the community, plus spread awareness about the disorder and the needs of Angelman`s children and their families.
Angelman Syndrome, according to the Angelman Syndrome Foundation (http://www.angelman.org) is a genetic disorder caused by abnormal function of the gene UBE3A, located within a small region (q11-q13) on chromosome #15. This region is deleted from the maternally derived chromosome in approximately 80% of individuals with Angelman Syndrome. For the remaining 20%, genetic testing can often identify other abnormalities that disrupt the UBE3A function.
Angelman Syndrome affects males, females and all racial/ethnic groups equally. There are estimated to be between 1000 and 5000 cases in the U.S. and Canada.
Tyler is the son of Clay and Stacey Davis, Henderson, CO. Clay Davis and Maggie Holben`s fathers - Clay Davis and Elmer Roth - were business partners for many years in the Denver area. The website is dedicated to Elmer and Clay (senior).
http://www.OurAngelTyler.com includes Tyler`s personal story, photographs, Angelman Syndrome background information and links to websites for obtaining further information. "The site is a work in progress. We intend to update photos and information regularly - showcasing Tyler throughout his life," Holben explains.
Absolutely Public Relations has been in business since 1999. The company recently announced its online press kit product, accessible at http://www.online-presskit.com and established http://www.denverprnewsroom.com. The company website is http://www.absolutelypr.com. Other pro bono work has been done for Colorado CASA and the JSG (Junior Symphony Guild). Holben confines pro bono work to issues and concerns affecting children.
For more information, call Maggie Holben at 303-984-9801 or e-mail her at
Source: PR Web™
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